Haleigh's MRI came back and Dr. Jea has given us the "all clear" for the time being!!!!
We go back in to see Dr. Jea for our technical 3 month check up, and after that we won't see him until August.
Haleigh's room is coming along, more quickly than the rest of the house, and I will be posting pictures as soon as it's complete!
much love
jess
Sunday, April 6, 2008
Friday, April 4, 2008
Pictures & MRI
Well, a lot has been going on in this little Griffith household lately. We have been living in a construction site, basically. There are rooms left half unpainted, with all of the paint and accessories all over the floor. Boxes galore in the kitchen - some unpacked, others just opened to get one item out and then left. And laundry piles like I've never seen. I do laundry daily, and there is still SO much left to do. Oh well. It's OUR house. And we want to take the time to make it perfect for us.
As I type this, I'm uploading pictures of the house, running the washing machine & dishwasher, listening to Haleigh talk to her froggy toy, and waiting on Mr. DirecTv. Who knows how long he's going to take! Miss Priss has done amazingly well through all of this - she's such an awesome lil baby!!!
Her first MRI since we left Texas Children's was yesterday. It was scheduled for Tuesday, but we had a little time issue. Driving to the Med Center from The Woodlands is COMPLETELY different from driving in from the Heights...Needless to say, after a few choice words to some of the less than brilliant people that were working, we were rescheduled for Thursday. We went in, got there 40 minutes early, and got all of the questions asked of us by the staff before we got called back (which I love - less BS in the back, faster to get her to MRI). Once we got called back, the nurse came in and said they were going to put in her IV. Now, most of you know that Haleigh has inherited Griffith veins - pretty much impossible to find - thanks for that one, Griffith ladies ;-). This nurse was awesome - one prick, and the IV was in. Haleigh was comforted by Sugar for that part as I do not do needles very well. Anyway...Haleigh got called down early (very rare!), and once they gave her the anastesia, she was out in about 10 seconds - no lie! When we went back to see her in recovery, she was awake & having some yummy pedialite. She was not as drunk of a baby as she was last time, but still pretty funny to watch.
I call in at 10am to get results, so I will post them as soon as I get them.
Here are the pictures from moving days, crawfish boil, Haleigh's first Easter, and Uncle Johnny holding Haleigh Bug for the first time ever!!!
http://www2.snapfish.com/thumbnailshare/AlbumID=223844729/a=33526050/t_=33526050
More later.
much love,
Jess
As I type this, I'm uploading pictures of the house, running the washing machine & dishwasher, listening to Haleigh talk to her froggy toy, and waiting on Mr. DirecTv. Who knows how long he's going to take! Miss Priss has done amazingly well through all of this - she's such an awesome lil baby!!!
Her first MRI since we left Texas Children's was yesterday. It was scheduled for Tuesday, but we had a little time issue. Driving to the Med Center from The Woodlands is COMPLETELY different from driving in from the Heights...Needless to say, after a few choice words to some of the less than brilliant people that were working, we were rescheduled for Thursday. We went in, got there 40 minutes early, and got all of the questions asked of us by the staff before we got called back (which I love - less BS in the back, faster to get her to MRI). Once we got called back, the nurse came in and said they were going to put in her IV. Now, most of you know that Haleigh has inherited Griffith veins - pretty much impossible to find - thanks for that one, Griffith ladies ;-). This nurse was awesome - one prick, and the IV was in. Haleigh was comforted by Sugar for that part as I do not do needles very well. Anyway...Haleigh got called down early (very rare!), and once they gave her the anastesia, she was out in about 10 seconds - no lie! When we went back to see her in recovery, she was awake & having some yummy pedialite. She was not as drunk of a baby as she was last time, but still pretty funny to watch.
I call in at 10am to get results, so I will post them as soon as I get them.
Here are the pictures from moving days, crawfish boil, Haleigh's first Easter, and Uncle Johnny holding Haleigh Bug for the first time ever!!!
http://www2.snapfish.com/thumbnailshare/AlbumID=223844729/a=33526050/t_=33526050
More later.
much love,
Jess
Tuesday, March 25, 2008
The New House!
Well, after a long weekend, we are somewhat settled into the new house in The Woodlands. Jared & I are going on virtually no sleep, attempting to get as much done in every waking hour possible. We are still lacking a fridge, sink faucet, disposal, working dishwasher, and all of our furniture from the apartment. Jared & his dad moved all of the boxes from the apartment over on Friday, and we've attempted to unpack some...I'm hesitant to unpack before we clean up after the lady that lived here before us.
I got some great pictures this weekend, and will upload them to the website soon.
Hope all is well.
love
jess & jared
I got some great pictures this weekend, and will upload them to the website soon.
Hope all is well.
love
jess & jared
Thursday, March 13, 2008
First Post-Op Check Up with Dr. Jea
So, Haleigh had her first post op check up today. We met with Dr. Jea (the neurosurgeon) and Dr. Okcu (the oncologist). There were a few scheduling problems (boys really shouldn't be left to this stuff!), but thankfully we made both of our appointments.
Dr. Jea said that Haleigh looked great, her incision was healing nicely, and her soft spot felt normal. He suggested that we bumped up the first MRI from 3 months post op to 6 weeks post op, so they'll be calling us tomorrow to schedule this. At that appointment, we'll also check the level of her medicine to see if it's still the correct level.
Dr. Okcu said the same thing - that Haleigh looked great and he was glad to see her in such good spirits. Dr. Okcu's office was in the cancer center, and it was quite a big awakening. I was pretty nervous sitting in there, and praying to God that we'd never have to put Haleigh what those kids were going through. I feel completely awful for these children, but they all looked like they were in such great spirits, so I just slapped a smile on my face for them.
All in all, it was an OK day. Haleigh has had a fever today, has been throwing up a bit more than normal, and I'm just a little stressed out. Oh well...things could be MUCH worse.
Off to cook dinner, do laundry, pack, and entertain the baby & husband!
More later.
Much love,
Jess
Dr. Jea said that Haleigh looked great, her incision was healing nicely, and her soft spot felt normal. He suggested that we bumped up the first MRI from 3 months post op to 6 weeks post op, so they'll be calling us tomorrow to schedule this. At that appointment, we'll also check the level of her medicine to see if it's still the correct level.
Dr. Okcu said the same thing - that Haleigh looked great and he was glad to see her in such good spirits. Dr. Okcu's office was in the cancer center, and it was quite a big awakening. I was pretty nervous sitting in there, and praying to God that we'd never have to put Haleigh what those kids were going through. I feel completely awful for these children, but they all looked like they were in such great spirits, so I just slapped a smile on my face for them.
All in all, it was an OK day. Haleigh has had a fever today, has been throwing up a bit more than normal, and I'm just a little stressed out. Oh well...things could be MUCH worse.
Off to cook dinner, do laundry, pack, and entertain the baby & husband!
More later.
Much love,
Jess
Wednesday, February 27, 2008
New Pictures.
I've added some new pictures to Haleigh's snapfish account. They're pretty cute!
Hope all is well.
http://www2.snapfish.com/share/p=254131202923796237/l=348584997/g=33526050/otsc=SYE/otsi=SALB
Hope all is well.
http://www2.snapfish.com/share/p=254131202923796237/l=348584997/g=33526050/otsc=SYE/otsi=SALB
Wednesday, February 20, 2008
Four Month Check-Up Today!
We ventured out to The Woodlands today for Haleigh's four month appointment today. While the doctor was late, Haleigh did amazingly well with the shots. Jared & I were expecting her to gain quite a bit of weight since she ate so much in the hospital (due to the steroids), but she's actually still listed as 25% on the charts. She came in at 12lbs 14ozs, and was 25 1/2 " long (75%). Her head is right in the middle, so that's good news.
Dr. Hill was pretty surprised to hear about Haleigh's last week (our primary care doctor, Dr. Hill was out of town while our adventure was going on), but glad to see that she was doing so well.
It's been an insanely long day, starting at 7am and Haleigh just now taking a nap with her daddy. We are hoping and praying that Haleigh gets back into her old sleep routine soon - her daddy & I aren't faring so well with such little sleep.
Off to go cook dinner...just wanted to update everyone on her 4 month check up!
Hope all is well.
Much love,
Jess & Jared
Dr. Hill was pretty surprised to hear about Haleigh's last week (our primary care doctor, Dr. Hill was out of town while our adventure was going on), but glad to see that she was doing so well.
It's been an insanely long day, starting at 7am and Haleigh just now taking a nap with her daddy. We are hoping and praying that Haleigh gets back into her old sleep routine soon - her daddy & I aren't faring so well with such little sleep.
Off to go cook dinner...just wanted to update everyone on her 4 month check up!
Hope all is well.
Much love,
Jess & Jared
Monday, February 18, 2008
Home again, home again.
We're home and settled. Well, somewhat. We came home and I realized just how much crap needed to be done here - dishes, laundry, cleaning the house for the week, going to the grocery store...
Haleigh took a 2 hour nap during our lunch, and then napped with her daddy for about 2 and a half hours this afternoon. Hopefully that sleeping pattern will continue through the night. I desperately need the sleep - Jared, on the other hand, has snuck in naps and got a break tonight so he's good to go.
It's pretty overwhelming being home. It's insane to think that a week ago we were praying over our little girl before bed, preparing to send her off to surgery. And now she's home with us, ready to play just like nothing happened.
The plan is for me to get LOTS of housework and laundry done tonight so we're ready to go for the week. We have Haleigh's Valentine's we still need to send out - oops! Kinda got a little distracted.
Gonna go play with the baby, then more laundry, and lots & lots of thank you notes! I don't anticipate getting any sleep for a while!
More later.
Much love,
Jess
Haleigh took a 2 hour nap during our lunch, and then napped with her daddy for about 2 and a half hours this afternoon. Hopefully that sleeping pattern will continue through the night. I desperately need the sleep - Jared, on the other hand, has snuck in naps and got a break tonight so he's good to go.
It's pretty overwhelming being home. It's insane to think that a week ago we were praying over our little girl before bed, preparing to send her off to surgery. And now she's home with us, ready to play just like nothing happened.
The plan is for me to get LOTS of housework and laundry done tonight so we're ready to go for the week. We have Haleigh's Valentine's we still need to send out - oops! Kinda got a little distracted.
Gonna go play with the baby, then more laundry, and lots & lots of thank you notes! I don't anticipate getting any sleep for a while!
More later.
Much love,
Jess
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