Saturday, Jared, Haleigh and I went out for breakfast. We came back to the apartment, and I was getting Haleigh out of her carseat. She didn't respond to us at all. She normally freaks out when I take her out of her carseat, but this time she just was a limp body. Her leg was twitching, but we thought it might be from the cold. We walked back to our apartment, and she continued to be wierd. We laid her down on the floor, and it was the scariest thing ever. Her eyes were in the back of her head, she had her neck arched, her leg was twitching, and she would not respond to us. Jared snapped in her face and nothing. She did not respond at all. At that time, we looked at eachother, got the diaper bag and got ready to come to the ER. While we were putting her blanket on inside the apartment, she threw up big chunks on me, and then was her normal self.
We made it here to Texas Childrens around 10am. We had to sit in line, but they moved so very fast downstairs. The ER staff was absolutely amazing (besides the MEAN lady that sucked at taking her blood), and got us in very fast. Within 3 hours of being in the ER, we had an IV of anti-seizure meds, CAT scan, and they were working on getting her admitted and waiting for the neurosurgeon to come and speak with us. Our ER doctor was increadible. He was very patient with us, even bringing in tissues for us as he explained his diagnosis - Choroid Plexus Tumor.
So, we finally got up into a room about 5pm, we were in our own private room! Let me be the first to tell you - the rooms at Texas Children's are awesome! We have our own bathroom, a pull-out bed, and plenty of storage space. We also have a great view of the med center! Haleigh is hooked up to an IV in her heel, and a heart monitor on her toe, along with some crap on her chest measuring something. Basically, she's pretty wired!
Once we got up here, our nurse told us that the neurosurgeon wouldn't come in at night (Saturday), so we prepared to calm down and just relax. Dad, Cheryl (a family friend that's also a nurse!), Aunt Dawn & Aunt Donale left us for the night and we just started watching TV and doing some research on Choroid Plexus Tumor. (Dad left us his computer so we could email our family & friends, and to keep us entertained!). Much to our surprise, the neurosurgeons DID come visit us quickly last night. They briefly explained to us what was going to happen, and told us that they'd see us in the morning.
Here we are...Sunday morning. Haleigh is playing with her Daddy - flirting away with him. She's starting to get a little fussy because we cannot feed her - We are scheduled for an MRI and an MRA this morning. The MRI department was supposed to open at 730am, but we're still waiting on a call for them to bring her down.
Now we play the waiting game. As most of you know, Jared & I are NOT good at being patient when it comes to the well-being of our baby girl. But what parents are?!? Haleigh is being a "rock star" as her Aunt Patty would say, and we're just praying that she stays this way.
As it stands, we're having an MRI and MRA this morning, the neurosurgeons will come in and speak to us, and a biopsy is scheduled for Tuesday morning. Ovbiously, if they find something more pressing in the MRI or MRA, they will bump up the biopsy to Monday.
I am going to try and keep this thing updated as much as humanly possible. Please understand if I do not! Jared & I both have access to our email, cell phones, and we also have a direct line in our room if you didn't know. The number is 832.826.1009..
I apoligize if this is just completely scatterbrained and rambling...it's been a long 24 hours full of way too much information and way too little sleep!
Please continue to pray for Haleigh and for the doctors that will be operating on her. We know that she is in God's hands, and we know that our angels were watching out for us in letting us see her siezure.
Thank you for everything!
Much love,
Jess & Jared
No comments:
Post a Comment